Abordaje de la Amiloidosis hereditaria
A DAY FOR CONNECTING PATIENTS AND CARERS,
A day for connecting the amyloidosis community to the general public.
The objective for the first ever World Amyloidosis Day, organized by Amyloidosis Alliance and patient organisations from 18 different countries, spanning 4 continents, is to alert the world to the diagnostic delay that patients face, which averages 4 years*.
Faster diagnoses and better quality treatment can only be acheived by more widespread knowledge of the disease.
We chose the symbolism of the link for bringing patients, carers and all other caregivers together. Each and every one of us has something to bring to the fight against the illness.
Our campaign is aimed at all: health authorities and professionals, pharmaceutical companies, scientists, associations, etc. Let’s be the link to supporting patients and their loved ones.
THE AMBASSADOR OF THE DAY
Eric Emmanuel SCHMITT
He was born in 1960 and is a graduate of the Ecole Normale Supérieure, with a degree in philosophy.
He is one of the most represented French-speaking authors in the world. His plays are recreated and reperformed all over the world in national and private theatres.
He began his career as a novelist in 1994 with La Secte des Égoïstes and has received 31 awards worldwide for his writing. He is one of the most widely read authors and the most studied in secondary schools.
Tell us your AMYLOSTORY
CALL FOR TESTIMONIALS
For this World Amyloidosis Day, the man of many Molière awards and Goncourt prizes shall participate in our “My Amylostory” miniseries by reading one of your stories during an event that will be broadcast live on social media.
Whether you are a patient, a carer, a helper or a medical professional, please participate!