A DIAGNOSTIC CHALLENGE
A DIVERSE DISEASE
The different forms of amyloidosis are very different illnesses.
They do have one thing in common, though: they are caused by an abnormal build-up of proteins in the body, that meld into plates that clump together and affect some organs negatively – generally the heart, the kidneys and the peripheral nervous system.
Some forms are hereditary, while others are acquired.
Diagnostic delay is one of the major issues of the disease, as its effects are often irreversible and sometimes deadly.
Late diagnosis and treatment are less and less acceptable, as modern medicine can vastly improve the day-to-day lives of patients and their loved ones, as well as increase life expectancy.
The link that we are trying to build through World Amyloidosis Day will bring all those affected by the disease, directly and indirectly, together.