Clara’s Journey
I am Clara, I am 32 years old, originally from El Salvador, but I live in California.I was diagnosed with amyloidosis laryngeal in January of 2021, after 2 years of loosing my voice slowly, and doctors trying to figure out what was going on.We did …
Amiloidosis por casualidad!
Mi nombre es Rocío , tengo 37 años y estoy diagnosticada de Amiloidosis por casualidad…. bendita casualidad!!! Yo sufro mucho de infecciónes de garganta o bien por el frio , o bien por la bajada de defensas. En una consulta de urgencias , mirándome la …
Amy’s Disease aka Amyloidosis
I was diagnosed with Amyloidosis in 2018, age 52, following several years of visits for symptoms that couldn’t be explained. I knew something was wrong but routine check ups showed nothing abnormal. The amyloid was found through a routine colonoscopy, in my GI tract.Amyloidosis was …
Mom’s Story
It began New Years Day of 2019, when my Mom had to have her gallbladder removed. Over the next few months, Mom lost around 70lbs and we had no answers as to why or how. Appointment after appointment, doctor after doctor, no answers. As time …
Keep On Swimming
The end of 2016 at the age of 49 a few things started to go wrong. Ridges on my nails, bruising easily, continual respiratory illnesses, nausea especially after eating, biting my tongue constantly, frothy urine, and fatigue (the kind where if you don’t lie down …
Nacer en el lugar equivocado
Soy Vianey, nací en la capital de Ecuador, tengo 46 años y durante más de 15 años tuve cuadros muy críticos de gripe, amigdalitis, traqueítis, bronquitis, refriados comunes, etc., los cuales fueron tratados con antibióticos o bencilpenicilina, los médicos se limitaban a revisar mi temperatura, …
