Refined
I am a 43 year old, wife and mother who is currently living with ATTR. My gene mutation is ALA60, the one that goes after the heart is the least favorable is what I am told. …
My Amyloid Journey
My name is Julie, and I am 55 years old, I work as aAdministration officer in my local hospital. …
Soy una extraña
Hola, me llamo Adriana Briones. Para ti soy una extraña.Tengo Amiloidosis Hereditaria y si, también es extraña… …
John’s Journey
My husband John M. was diagnosed on Feb 5, 2021 with AL Amyloidosis affecting the heart. After a year of complaining of shortness of breath. …
The Importance of Early Diagnosis
My name is Jason Conway and I am a husband, father, and a teacher. I am 50 years old and have lived a normal, healthy life. I have always been active and have taken care of myself. I am also an amyloidosis patient. …
Une histoire de famille
Papa est tombé malade au début de sa retraite dans les années 70 . On ne comprenait rien à sa maladie que les médecins ne connaissaient pas... …